Hi Everyone
I'm really hoping someone can give me some advice here - apologies if what follows is a bit of a rant but I am so frustrated
I have been having back problems for around 10 years now, and have been to various GPs on and off. I tried a chiropractor, but after spending nearly ยฃ600 I felt like they were just clicking my back one way one session and the other way the next, and I was getting no relief from the pain.
The GP eventually referred me to the physio at the local hospital, who said that my lower back pain was a result of me having short hamstrings, with the nerves also being short. I stuck with physio for over a year, and it did nothing to help the back pain.
Then in Feb last year during a particularly bad episode with my back, I woke up one morning to agonising pain in my right leg, it almost felt as if it was being flattened by a steam roller. I went back to the GP, and had 2 x 40 min appointments with a trainee GP who checked all my reflexes, and advised me to wear more sensible shoes ( I am a teacher and wear Ballet pump style flats).
Over the next few months I experienced an increasing weakening in my right leg, with a weird movement when I walk.The leg also 'gives way' every now and then, which in June resulted in me severely damaging my left ankle as I fell. The leg is also numb down the outside of the leg and calf, and over the top of my toes.
I was seeing the GP roughly once a month in agonising pain, and was told that my back was going into spasm, and I was prescribed diclofenac and diazepam. I tried to have a deep tissue sports massage, and found it excruciating, especially around a point in my right buttock.
It wasn't until September, when I saw a GP at the practice that I had not seen before that I was referred for an MRI, when the results came back the GP was so concerned, that as he could not get hold of me when he called, he rang my housemate's mobile (who is registered at the same surgery).
It turns out I have an extruded and sequestrated disc at L4/5 where the disc has migrated upwards within the spinal column the whole height of the vertebrae. The GP siad that if I had not told him about the numbness in my leg (which none of the other gps had asked about) he would not have even referred me for an MRI as I am very young for this (I am in my 20s). He told me he had spoken to a spinal surgeon who had said that I needed to be referred for surgery asap.
I then did not get an appointment with the consultant until 23 Jan this year (4 months after the GP referred me), I saw one of the Fellows as the consultant was not in that day, who confirmed that the herniation was very severe, and was pressing on the nerves for the whole height of my vertebrae, but he was hesitant about referring me for surgery because of my age, and because the pain I appeared to be in does not match up with the MRI and he had to "treat the symptoms not the MRI". Now I am aware from previous injuries that I have a high pain threshold (I once broke a bone in my foot and did not realise, it wasn't until 2 yrs later when I had my foot xrayed for a different reason that it was picked up as it hadn't set straight), I have also been brought up to get on with things so I have forced myself to carry on with work even through the extreme pain. I also had the appointment when I was not in the middle of an episode of extreme pain. Luckily my Dad had gone with me to the appointment, and with him backing up how much pain I was in when my back got really bad, the doctor said he would put me on the waiting list for surgery, but told me that the waiting list was up to a year long.
I am so frustrated now, it has taken me years for doctors to take my back pain seriously as I am so "young" and refuse to give in and take time off work, and now I am going to have to wait up to a year to get surgery, and I cannot cope with another year of diazepam and diclofenac - which is starting to give me really bad stomach upsets.
With typical luck the weekend after my appointment, my back "went" again, I actually felt a grinding in my spine which really scared me. I rang my GPs who would not give me an appointment but gave me a prescription for tramadol on top of the drugs I already have. I then found it increasingly difficult to pass water, which I know is a danger sign in terms of disc problems, so I rang 111 for reassurance, who sent an ambulance and I was hospitalised for 2 days, then discharged as I was not 'losing control of my bowels'. Since I have been home I have researched how much it would cost for me to get the discectomy done privately (approx ยฃ6500 which there is no way I can afford). I have also since received a letter from the QMC giving me a second appointment with the consultant on 23rd Feb, and I have an appointment with my GP on Sat about referring me to the pain clinic. I am still having difficulty passing water, and although I try to not take the tramadol as they really knock me out, I cannot go for a day without taking them as I cannot cope with the pain.
Soooo apart from needing to offload as I am so frustrated I just wondered if anyone had any advice on speeding things up a bit as I really do not think I can cope with this for another year? Does anyone know whether it is possible to get referred to a hospital with a shorter waiting list as it seems some people have only had to wait a couple of months ( or would it be that they had just gone private)? Has anyone else been to a pain clinic and does that help?
Any advice would be amazing!!
Thanks
Yvette