I have been reading these pages for well over a year now and often wish i could sit comfortably enough to compose a reply and let others know of my own experiences and ask questions about theirs. So now I have a new laptop I can stand up and type!
I developed sciatica for the first time 2 years ago. I spent a year taking medication which didn't help and eventually I was sent for an MRI scan. The results showed a large disc prolapse, pressing against the sciatic nerve and possible nerve damage.
I was rushed in for a discectomy and after recovering from the operation found I was still in considerable pain.
Initially I was told this was caused by scar tissue, then later that the bones had perhaps fused together causing stiffness and pain in my lower back. The operation was in March 2009 and I am still suffering. I'm now being told the pain is down to permanent nerve damage and possibly an infection.
I had only positive things to say about my treatment whilst in hospital and thought as it was early days, I'd give it time, take it easy and see how things go. I followed all the advice I was given, although I was never offered any kind of physiotherapy which I thought was odd.
I've since had two relapses; one severe which happened last September and resulted in hospitilisation for 5 days and a spinal nerve root block. The pain felt as though it had moved into my hip and my leg kept giving way, I could hardly stand straight or sit down, I couldn't sit up or turn over in bed and my back kept going into spasm - I was exhausted. And to top it all off, I experienced a very different hospital second time around - same people but poor care and treatment and an attitude I can only describe as being made to feel as though I was 'putting it on'.
The second mri scan showed the disc above the one I had removed is now bulging - although not bad enough for more surgery apparently. I say apparently as despite asking to see the results myself and have them explained to me, this never happened. I had a check up with my consultant a couple of weeks ago and he doesn't think another nerve root block would be suitable either as the pain is no longer predominantly 'sciatica' pain. He finally showed me the scans - and even to my untrained eye the bulge looked quite bad - however, he discharged me from the neuro department and recommended my GP refer me to a pain management clinic.
After the relapse I was offered physiotherapy - and to start with I was doing quite well. I noticed a definite improvement in movement and flexibility but then I was transferred to a different unit and have since failed to make any further progress whatsoever as my new therapist says all the previous excercises I was given were far too advanced and were aimed at building strength rather than re-mobilisng and relieving pain.
I thought core strength and posture were key to helping prevent further relapses? I have tried to get transferred back to my original therapist, even though it would mean extra travelling, but this is proving impossible.
I'm currently off work again, due to not being able to drive or sit comfortably (I have a long commute to work plus being desk based I am expected to sit for long periods). This obviously compresses the spine and aggrivates the pain further.
My doctor took some blood from me last week and the results show my 'inflammatory indicators' are significantly high (Ive never heard of those) - which leads him to believe I have an infection attacking the discs. I am due back tomorrow for more tests following a weeks' course of anti-biotics - the results of these will show if the infection has cleared.
I am still in as much pain as before and I struggle to turn over in bed, sit upright for long enough to read a paper or carry out any household duties such as hoovering etc. I don't feel I am receiving the medical attention I require and don't know how to go about changing things.
I have tried - and I will go on being willing to try - anything with might help or offer some relief. The pain still goes down the back of my leg, stopping before the knee and radiating into both hips. It's a different kind of pain now - an almost constant pulling senstation with sharp pains and twinges whenever I move.
As well as persevering with physiotherapy, I've tried gentle yoga, pilates, swimming, breathing techniques and spent a fortune visiting a chiropractor. My back still feels weak and my posture is terrible.
As most people will appreciate I am worried not only for my health but also for my job and my finances - I can't go on taking time off work.
I am 30 this year and feel helpless and frustrated beyond belief. My plans are on hold. I try and stay optimistic but then depression sets in that makes me question the future.
Will I ever lead a 'normal' pain-free life again? Will I be able to enjoy the activities and hobbies I used to, can I have children and what about complications when it comes to giving birth? There is so little advice from my consultants, and what I have been told is vague.
I feel invisible - like my concerns are simply being dismissed and I'm at the end of my tether. I can't carry on like this, my quality of life is diminishing.
Luckily i have a very supportive boyfriend and a great network of family and friends, all willing to help me, they keep me going and make me laugh. But when I attend endless wait-and-see hospital appointments I'm torn between putting on a brave face and being assertive in an attempt to move things on, or crying with weary tiredness and frustration and risk looking like a mad woman who has lost all sense of rationality (I have tried both approaches and neither appear to have progressed things much!)
Work have been good and I've got an adapted chair - but I am still uncomfortable the second I sit down, regardless of how many breaks I take. I even spend my lunch break laying in the sick room with a cold gel pack on my lower back, just to get me through the day. But some of my colleagues think I'm a hypochondriac - as I seem to be always moaning about being in pain yet nothing is being done about it - they must think it can't be that bad otherwise I'd be getting help.
I am in much more pain now than I ever was before the surgery. I don't want to scare anyone or put them off having treatment - I really had very few options left available to me before having my discectomy as the disc was pinching the nerve and I was told because of the location and severity I was at risk of paralysis. Very scary indeed, so I can't regret having the op or waste time wishing I hadn't tried it.
But now that I have and I've been left like this - I need to find a way of coping as best I can.
I'm just at a loss for what to do next. Has anyone else experienced such chronic, unexplainable pain so long after the initial surgery? Are there any other options to explore? Would a back brace or similar give me some support and help take the pressure off my spine, plus retraining my poor posture at the same time? Any help would be appreciated.
Obviously a lot of people have had great results from surgery and I wouldn't want my story to sway someone either way - I just hope there might be someone out there who has experienced similar difficulties and ultimately found some relief - or at least a way of dealing with the pain and the implications it has on every aspect of a persons life.
I am in much need of inspiration and encouragement right now! It would be great to hear from anyone in a similar situation.
Thanks x