ME / Chronic Fatigue Syndrome - HELP

[BetapegLLC]

Hi Lin,

Re the nutritional changes, I had food intolerance tests done and it turns out i am intolerant to just about everything apart from some fruit and veg. Sensibly, the nutritionist advised that I couldn't cut everything out because it would be too restrictive so she prescribed various supplements. I take digestive enzymes and berberis drops before meals and also betaine hydrochloride before meals with protein to help my system digest the food. I take a powdery type stuff called maxicol which has psyllium husks and probiotics in it. I also take loads of other supplements such as vitamin c, multi vitamin, msm (to repair damage to gut), chromium picolinate (to balance blood sugar) and various others. I am following the candida diet so don't eat yeast, sugar, anything fermented such as vinegar, mushrooms, soy and all the other stuff that provokes candida. I do eat fruit except bananas but only in the morning on an empty stomach, I don't eat fruit after anything else. I don't eat wheat or dairy because I am very bad with them. I don't eat anything with artificial sweeteners, colours, flavourings, preservatives etc. Phew! I think that's it. I am pretty strict but do sometimes have a little treat. And I can still eat plain crisps. Hooray!

If you have candida, bread is not recommended because it has yeast. Because I don't eat wheat I tend not to need to use any sweeteners on anything anyway but I would never use an artifical sweetener (a chemical one) so can't advise you on that one. I'd just like to mention that all these supplements were professionally recommended and I am taking them under guidance.

Re ME support group, I think it's a good idea, although I do feel already that I get plenty of support and guidance from HP without the need for a specific support group as the people here are very helpful. But everything helps so its certainly an idea!

Hope this info is what you were looking for!

Lucy

 

[Elyse]

For anyone with ME or FMS: there is an excellent "online coffee shop" for people with these conditions, and their carers. It was started nearly six years ago by a girl who was bedridden with ME - she is now well enough to be cautiously trying to do some work again, and the online forum goes from strength to strength. It has members all over the world, including Australia and the US, although most live in the UK. They try to organise low-key residential meets twice a year in beautiful, relaxing parts of the country - always one in Snowdonia, and the Lake District is another favourite. There's the buzzing forum, and also a chat room, and a base website with useful links. There's a special section for carers. The overall philosophy of the website is that we may be ill but we don't have to be downbeat or feel defeated! there's always a happy, supportive, sensible, funny, positiveatmosphere.

You can check it out at [link=http://www.brainfog.org]www.brainfog.org[/link] - click on the link for the forum to get the flavour of the place!

Best wishes from another person living with ME - after reading this thread and hearing of a friend who went from housebound to employed I am now thinking of trying reflexology

wibble puppy xx

 

[cam can help]

Brainfog.org gets my vote too!!! don't know where I would have been, through the worse part of my illness, without it. long may it reign!! I still pop in now and again to say hello. great bunch of people.

I would never say I am cured of my M.E. but I have gone from bed-bound to a self-employed therapist. 'recovery' all started with receiving Reiki............ then Reiki attunement ........ then regular reflexology and massage treatments.......... then college to re-train to be a therapist myself. I changed my diet and cut out meat products. and through it all I PACED PACED PACED. all together these changes have made me able to lead a 'normal' life.

good to see you here Wibbly hope you are doing well

blessings all, Marcie

 

[txxbpwob]

hey marcie!!!!! *waves* good to see ya, babe!